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확실한als인지 궁금하네여..

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작성자 주인수 (202.♡.14.115) 작성일 10-09-24 08:04    조회 5,812회

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임상증상으로 보아 루게릭병의 가능성이 있습니다. 물론 약물 중독과는 상관이 없습니다.
다른 루게릭병 환자와 같이 진단이 확실하다면 보전적 치료이외에 다른 방법은 없습니다.
호흡관리, 통증, 심리적 동요, 식사 등과 관련된 증상 및 재활치료가 필요합니다.

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> 천안에사는 루게릭의심환자의 아들입니다
> 2년전 저의 아버지께서 건강검진후 고지혈수치가 높다하여
> 약을 처방받아 1년반정도 복용하셨습니다
>
> 그러다 작년5월쯤부터 다리에 기운이없다하시며 운동부족인가싶어
> 그냥 보내다 10월쯤 서울 아산병원 재활의학과 외래 검진을 받았습니다
> 혹 약물중독이 아닌가 싶어 고지혈증 복용사실을 알렸구여
> 그곳에서 3개월 지켜보자그러더군여 물론 MRI검사는 했습니다
> 그렇게 2개월후 다시 아산병원을 찾아서 근전도 검사를 했습니다
> 다시 3개월 약물중독일수 있으니까 또 지켜보자더군여
> 약물중독이면 시간이지나면괜찮아질꺼라고 그래서기다리다
>
> 올4월 신촌세브란스 신경과로 갔습니다 아산병원자료를가지고여
> 그런데 교수님 왈 자기가보기엔 루게릭인거같네여 유전자검사하자고
> 그리고 이병은약도없고 치료도불가능하니 입원치료같은건 권하지않는다고
> 그리고3개월후에 다시 검사해보자고..
>
> 그렇게시간을보내는사이 아버지께선 이제 걷지도못하십니다
> 저번달엔 누우면 숨이차서 잠을못주무시더군여 그래서 천안단대신경과를갔더니
> 루게릭이면 지금 손쓸일없다고 호흡기내과로 가라더군여 그곳에서 산소수치와 이산화탄소수치가 않좋다구하더라구여 약처방받아드시던중
> 지금은 다리가 뼈만남았습니다
>
> 그런데여 얼마전부터 헞것이 보이시고 이상한 말씀을 하시고 하시던데 이증세는
> 병이얼마나 진전된상태일까여?? 참 지금은 말씀도 잘못하십니다
> 몸두 부들부들떠시구여 숨쉬는것도 힘들어하시구여
>
> 저희 가족들은 약물중독이길 바라고있습니다
> 세브란스병원에서도 말씀만그리한거지 확진을 내린것이 아닌것이기에..
> 그런데 아버지께선 다포기하신듯 다른병원 검사는 이제 필요없다하시네여
>
> 약물중독으로도 이런증세를 보일수 있는건지 궁금하구여? 
> ALS맞다면  가족들은 이제 어떤조치를 취해야 할까여??
> 교수님 답변기다리겠습니다
>
> 확실한 als
>

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