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울산에 사는데 치료를 어떻게해야될지..

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작성자 주인수 (202.♡.14.115) 작성일 10-09-03 16:56    조회 6,253회

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제 생각에도 근육병이 가장 가능성 있는 임상진단입니다. 근육병은 그 종류가 너무 많아 여기서 다 말씀드릴 수 없고 전문의 진료를 보도록 하십시요.

사는 곳이 울산이면, 부산대 양산병원 신경과에 근육병을 전문으로 하는 교수님이 계시므로 도움이 되리라 생각합니다(교수님 성함은 양산병원 신경과에 문의하면 금방 알 수 있습니다).   
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> 저는 고등학교 때는 운동선수까지 하는 그런 건강한 남자였습니다.
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> 하지만 고등학교 1학년때 신체검사에서 알았는데 간치수가 100이넘게 나왔습니다.
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> 중학교때는 학교가 걸어서 3분거리에 있고 했지만 고등학교때는 버스를타고 다니고 아르바이트도 해서
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> 피곤해서 갑자기 오른것인줄 알았습니다. 하지만 이 간수치가 떨어지지는 못하고 일을 하면할수록
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> 그리고 스트레스가 쌓일수록 간치수는 올라 갔습니다. 그리고 저는 피곤해서 계단이나 뛰는것이 귀찮아서
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> 걷기만하고 운동도 자주 하지 않았는데 그것이 지금껏 이렇게 남들보다 걷는거도 느려지고 계단 하나도
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> 무릎에 손을 집고 올라가야될 줄을 꿈에도 몰랐습니다. 오르막길이 나오면 남들보다 훨씬 올라가지도 못하
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> 고 허리도 펼수가 없었고 날이 갈 수 록 허벅지 근육과 종아리 근육이 없어지고 지금은 여자들 보다 허벅지와
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> 종아리가 가늘어졌습니다. 지금은 허벅지 뒷 근육과 옆 근육 그리고 안쪽근육이 거진 가늘어 진 상태이고
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> 종아리근육은 힘을줘도 물렁물렁한 상태입니다.
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> 제가 군대는 훈련소에서 500이라는 수치를 받아서 재검이떠서 울산에 동강병원에가서 간이 문제인줄알아서
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> 간조직 검사를 해봤지만 아무 이상이 없었고 의사가 간보다 근육에 염증이 생겨서 찢어져서 간에 무리가
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> 생겨서 간수치가 올라간것이라고 내과의사가 류마티즈내과선생님을 소개 시켜줬는데 거기서 근육 조직검사
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> 를 하였지만 20살때 내려진 검사결과는 근육다발염인가?? 다발성 근육염인지 판명을 받아서 면제를 받았습
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> 니다. 하지만 그 병명인줄알고 스테로이드제를 먹으면서 지냈지만 아무런 진전이 없었고 결국 의사선생님도
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> 다발염이 아닌것 같다고 판명을 내렸고 그래서 재활의학과에가서 의사 선생님께 물어봤더니 제가 근육이완
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> 병이라고 의심이간다고 유전자 검사를 하게 되었지만 그것도 아니라고하더군요..
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> 재활의학과 선생님은 근육병은 맞다고 하는데 병명이 확실지 않다고 그러고 저도 정말 이제는 궁금합니다.
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> 지금의 증상은 간수치가 항상 100이상이고 근육지수(근육의 피곤함??)이 2000정도 항상 나오고요 허벅지와
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> 종아리는 가늘어졌고 계단을 한칸도 못올라가고 뛰면 다리에 힘이풀려 주저 앉고 걷는거도 허리가 아픈것
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> 마냥 삐긋삐긋하게 걷고 사람들이 엉덩이로 걸어서그런지 다른 사람보다 실룩실룩 걸어다니는거 같다고합
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> 니다. 요새는 왼쪽어깨가 무거운거를 팔을 편상태로 쭉올리면 손끝이 목까지 올라오면 그다음부터 삐끗하듯
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> 이 아파서 다 들어올리지 못합니다. 이 내용을 보고 병명이 의심되는 걸 알았으면 하고요
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> 한국에서 근육을 확실하게 검사하고 잘치료하는 병원을 가르처 주었으면합니다.
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> 그리고 왠만하면 울산 근처도 한곳을 소개시켜줬으면합니다.
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