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울산에 사는데 치료를 어떻게해야될지..

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작성자 김진민 (218.♡.50.1) 작성일 10-09-03 14:37    조회 5,005회

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저는 고등학교 때는 운동선수까지 하는 그런 건강한 남자였습니다.

하지만 고등학교 1학년때 신체검사에서 알았는데 간치수가 100이넘게 나왔습니다.

중학교때는 학교가 걸어서 3분거리에 있고 했지만 고등학교때는 버스를타고 다니고 아르바이트도 해서

피곤해서 갑자기 오른것인줄 알았습니다. 하지만 이 간수치가 떨어지지는 못하고 일을 하면할수록

그리고 스트레스가 쌓일수록 간치수는 올라 갔습니다. 그리고 저는 피곤해서 계단이나 뛰는것이 귀찮아서

걷기만하고 운동도 자주 하지 않았는데 그것이 지금껏 이렇게 남들보다 걷는거도 느려지고 계단 하나도

무릎에 손을 집고 올라가야될 줄을 꿈에도 몰랐습니다. 오르막길이 나오면 남들보다 훨씬 올라가지도 못하

고 허리도 펼수가 없었고 날이 갈 수 록 허벅지 근육과 종아리 근육이 없어지고 지금은 여자들 보다 허벅지와

종아리가 가늘어졌습니다. 지금은 허벅지 뒷 근육과 옆 근육 그리고 안쪽근육이 거진 가늘어 진 상태이고

종아리근육은 힘을줘도 물렁물렁한 상태입니다.

제가 군대는 훈련소에서 500이라는 수치를 받아서 재검이떠서 울산에 동강병원에가서 간이 문제인줄알아서

간조직 검사를 해봤지만 아무 이상이 없었고 의사가 간보다 근육에 염증이 생겨서 찢어져서 간에 무리가

생겨서 간수치가 올라간것이라고 내과의사가 류마티즈내과선생님을 소개 시켜줬는데 거기서 근육 조직검사

를 하였지만 20살때 내려진 검사결과는 근육다발염인가?? 다발성 근육염인지 판명을 받아서 면제를 받았습

니다. 하지만 그 병명인줄알고 스테로이드제를 먹으면서 지냈지만 아무런 진전이 없었고 결국 의사선생님도

다발염이 아닌것 같다고 판명을 내렸고 그래서 재활의학과에가서 의사 선생님께 물어봤더니 제가 근육이완

병이라고 의심이간다고 유전자 검사를 하게 되었지만 그것도 아니라고하더군요..

재활의학과 선생님은 근육병은 맞다고 하는데 병명이 확실지 않다고 그러고 저도 정말 이제는 궁금합니다.

지금의 증상은 간수치가 항상 100이상이고 근육지수(근육의 피곤함??)이 2000정도 항상 나오고요 허벅지와

종아리는 가늘어졌고 계단을 한칸도 못올라가고 뛰면 다리에 힘이풀려 주저 앉고 걷는거도 허리가 아픈것

마냥 삐긋삐긋하게 걷고 사람들이 엉덩이로 걸어서그런지 다른 사람보다 실룩실룩 걸어다니는거 같다고합

니다. 요새는 왼쪽어깨가 무거운거를 팔을 편상태로 쭉올리면 손끝이 목까지 올라오면 그다음부터 삐끗하듯

이 아파서 다 들어올리지 못합니다. 이 내용을 보고 병명이 의심되는 걸 알았으면 하고요

한국에서 근육을 확실하게 검사하고 잘치료하는 병원을 가르처 주었으면합니다.

 

그리고 왠만하면 울산 근처도 한곳을 소개시켜줬으면합니다.

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