질병상담

BAE.jpg 홈 > 상담실 > 질병상담

ALS진단후 자문부탁드립니다.

페이지 정보

작성자 주인수 (202.♡.14.115) 작성일 10-03-23 14:48    조회 6,560회

본문

특별히 모친께서 별나다고 볼 수 없습니다. 이 사이트에서 여러 번 말씀드렸지만, 루게릭병이 진행하여 심해지면, 사지의 강직, 통증이 반드시 동반됩니다. 증상에 따라 적절히 약물 치료를 하셔야 합니다. 다리의 마비가 심한데 힘이 들어가는 것은 아마도 강직에 의한 증상이라고 생각됩니다.

하품이나 트림, 가려움증의 정확한 원인은 알 수 없지만, 이 역시 환자의 상태와 관련이 있을 것으로 생각됩니다. 증상에 따라 관련 전문과(소화기내과, 피부과 등)의 진료와 적절한 약물치료가 필요합니다. 

마지막 질문인데, 혀가 힘이 없고 말려들어가는 증상은 루게릭병에 의한 구마비(혀의 근육약화) 증상일 수 있습니다. 특별한 치료는 없고 구강을 항상 청결히 유지해야 합니다.
>
>
> 선생님 안녕하세요 . 저는 대구에서 루게릭병을 앓고 계시는 모친을 간병하는 젊은 청년입니
>
>
> 다.늘 여기서 많은환자분들 이야기들 참고로 많이 하고 있습니다.제가 궁금한게 있어서요. 저
>
>
> 희 모친께서는 루게릭진단2년정도 되셨으며 현재 다리를 못쓰시고 팔은 아주조금만움직이실
>
>
> 수있는정도입니다. 식사 대소변은 잘보시고요.근데 처음 병원에서 확정받고 이병이 앞으로 안
>
>
> 좋은 상황까지 가더라도 고통도 없고 몸이 아프지 않는다 하던데요.저희모친은 어깨 무릎등 관
>
>
> 절이 다 아프시고 몸특정부위부분들에 많은 가려움증이 너무 심하세요. 너무 간지러서 피가 날
>
>
> 지경이고 살이 피멍이 든것처럼 그렇습니다.누워계시부위는 아니고 가슴쪽 아랫배 발등 이런
>
>
> 곳들이 그러시네요.다리부터 증상이 오셨는데 발가락을 땅쪽으로 미는 힘은 많이 있으신데 발
>
>
> 가락을 위로 재끼는 힘이 전혀 없어요.이런것들 봤을때 제가 궁금한 부분 요약을 하고 자문을
>
>
> 얻고 싶습니다.
>
> 1.다른환자들분들도 모친처럼 가려움증이나 골절같은 아픔이 있는가요?
>
>
>
> 2.다리는 살이 많이 빠져 얇으신데 못걸으시고 못움직이셔도 저희 모친처럼 발가락이나 다리
>
>
> 에 힘이 많이 들어오나요?
>
>
>
> 3.잘못움직이시는 모친을 늘 안마를 해드리는데 해드릴때마다 늘 하품을 지나칠정도로 쉴새
>
>
> 없이 너무 많이 하십니다.또한 몸을 안마를 하면 등이나 팔다리 이 힘을주고 주물리면 지나칠
>
>
> 정도로 계속 트림을  하십니다. 예전에 한방병원에 계실때 하품을 연속으로 하시다가 3번정
>
>
> 도는 입이 안다물어지고 최대한 입을 하품크게 할때 처럼벌어져서 경련(?)같은걸 몇번이나 하
>
>
> 셔서 응급실 가셔도선생님들은 지켜보고 이해가 잘안가신다고 그런채로 30분동안 눈물만 흘리
>
>
> 면 입이 안닫혀 지신채로 계신적도 있었습니다. 이렇게 하품과 트림과, 하품할시 한번씩 입
>
>
> 이 안닫혀져서 경련을 일으키 실수 있나요?
>
>
> 4. 입안에 혀가 한번씩 말려 안쪽으로 옆으로 자기도 모르게 말려 들어가십니다. 이증상은 왜
>
>
> 그럴까요.?
>
>
> 질문은 이정도 입니다. 2년동안 지켜드리고 간병하면서 루게릭병이 이렇게 많은 부분들도 다
>
>
> 아프고 힘들게 하는것인가 아니면 저희모친 유별나게 이런증상이 신지 참 궁금합니다. 선생님
>
>
> 답변 기다리겠습니다.
>
>
> 바쁘신데 긴글 읽어 주셔서 감사드립니다.
>

댓글목록

wqwq님의 댓글

wqwq 아이피 (172.♡.210.145) 작성일

http://www.long-champ.com.de/, http://www.mcm-backpacks.com.co/, http://www.oakleys-online.com.co/, http://www.nike-mercurial.com/, http://www.barbour-jackets.us.com/, http://www.thenorth-face.com.co/, http://www.michaelkors.com.de/, http://www.airmax-shoes.com/, http://falcons.nfl-jerseys.org/, http://www.reeboks.com.de/, http://www.nike-shoesoutlet.com/, http://www.basketballshoes.com.co/, http://bengals.nfl-jerseys.org/, http://www.reebok-shoes.co.uk/, http://www.mcm-bagsoutlet.com/, http://www.soccershoes.us.com/, http://www.jerseysvstore.com/, http://www.oakleysframesvip.com/, http://www.oakleysunglasses.org.es/, http://www.ed-hardy.us.com/, http://thunder.nbajerseysvip.com/, http://www.cheap-michaelkors.com.co/, http://bills.nfl-jerseys.org/, http://www.katespades.com.co/, http://www.belstaff-jackets.us.com/, http://knicks.nbajerseysvip.com/, http://www.nikefreerunshoes.com/, http://www.burberryoutletonline.com.de/, http://www.swarovskis-jewelrys.co.uk/, http://www.nike-shoes-outlet.co.uk/, http://www.versacebagsoutlet.com/, http://www.bcbg-dresses.net/, http://www.hermesbags-outlet.com/, http://www.oakestore.com/, http://www.cheaptimberland-boots.com/, http://www.rosherun-shoes.co.uk/, http://www.cheap-iphone-cases.com/, http://www.burberryoutlet-sale.net.co/, http://www.coach-outlets.net.co/, http://www.asics-shoesoutlet.net/, http://raiders.nfl-jerseys.org/, http://www.polo-ralphlaurens.us.com/, http://www.swarovski-canada.ca/, http://texans.nfl-jerseys.org/, http://www.longchamps-bags.us.com/, http://www.jerseys.net.in/, http://www.burberry-store.com/, http://www.nike-shoes.com.co/, http://www.christianlouboutin-shoes.ca/, http://panthers.nfl-jerseys.org/, http://www.eyeglassesinsale.com/, http://www.barboursjackets.com/, http://www.nike-shoesoutlet.us.org/, http://www.outlet-asicsshoes.com/, http://www.rayban-lunettes.fr/, http://www.mizuno-outlet.com/, http://dolphins.nfl-jerseys.org/, http://www.polos-ralphlaurens.co.uk/, http://www.supra-footwear.net/, http://www.cheapshoes.in.net/, http://jazz.nbajerseysvip.com/, http://www.oakley-sunglassessale.com.co/, http://www.timberland-shoes.net.co/, http://www.cheapjerseys-outlet.com/, http://www.airjordans-shoes.com/, http://browns.nfl-jerseys.org/, http://www.outlet-ralphlauren.co.uk/, http://www.nfljerseys-sale.com/, http://www.fitflop-outlet.com/, http://www.michaelkorsbagsvip.com/, http://www.salomonshoes.com.de/, http://www.nbashoesoutlet.com/, http://www.outlet-true-religion.us.org/, http://www.barbour-jackets.in.net/, http://www.new-balanceshoes.es/, http://www.toryburchshoes-outlet.com/, http://www.outlet-michaelkors-online.com/, http://www.ralphslauren-polo.com/, http://kings.nbajerseysvip.com/, http://bulls.nbajerseysvip.com/, http://www.nike-airmax-shoes.fr/, http://www.michael-korsoutletonline.com.co/, http://www.airmax-schoenen.co.nl/, http://www.michaels-kors.com.es/, http://suns.nbajerseysvip.com/, http://spurs.nbajerseysvip.com/, http://www.tommy-hilfigers.co.nl/, http://www.nike-airmax.in.net/, http://www.coach-factory.com.co/, http://www.adidas-shoes.com.co/, http://pelicans.nbajerseysvip.com/, http://www.nike-skos.com/, http://www.kate-spadebags.com/, http://www.cheap-jerseys.mex.com/, http://magic.nbajerseysvip.com/, http://www.the-northface.com.de/, http://www.armaniexchange.us.com/, http://www.raybansoutlet.net.co/, http://www.levi-jeansoutlet.com/, http://www.louboutinshoes.jp.net/, http://bucks.nbajerseysvip.com/, http://cowboys.nfl-jerseys.org/, http://www.cheapskechersshoes.com/, http://nets.nbajerseysvip.com/, http://www.guessfactorys.com/, http://www.australia-uggs.com/, http://www.adidasshoes.com.se/, http://www.uggboots.co.nl/, http://www.outlet-true-religion.com/, http://www.hermesbagsoutlet.com/, http://www.valentinoshoes-outlet.com/, http://www.stone-islandestore.com/, http://www.nikeairyeezyshoes.com/, http://www.airhuarache-shoes.co.uk/, http://www.woolrich-jackets.com/, http://www.oakleysunglasses-canada.ca/, http://www.toryburchsoutlet.com/, http://www.hermes-birkinoutlet.com/, http://www.raybans.com.de/, http://jets.nfl-jerseys.org/, http://www.mkoutletonline.co.uk/, http://www.calvin-kleins.com.co/, http://www.dsquared2s.com/, http://www.pandora-charmscanada.ca/, http://www.tommyhilfigerca.ca/, http://www.raybanvip.com/, http://www.christian-louboutin-shoes.com/, http://www.nbateamonline.com/, http://www.coach-outletonline.ca/, http://www.cheap-mlbjerseys.us.com/, http://www.polos-ralphlauren.com.co/, http://www.converse-schuhe.com.de/, http://www.juicy-coutureoutlet.com/, http://www.outlet-toryburchshoes.com/, http://www.christian-louboutinshoesoutlet.com/, http://www.swarovskionlineshop.com.de/, http://chiefs.nfl-jerseys.org/, http://eagles.nfl-jerseys.org/, http://www.pandora-jewelry.top/, http://www.burberry-storevip.com/, http://www.fred-perrys.co.uk/, http://coachoutlet.euro-us.net/, http://www.ralphlauren-au.com/, http://www.philipppleins.us.com/, http://www.longchamp-bagsoutlet.com/, http://www.nike-factory.com.co/, http://www.soccershoes-outlet.com/, http://www.ralph-laurenpolos.net/, http://www.ray-bans.org.es/, http://www.nike-free-runs.de/, http://www.chiflatironhair.us.com/, http://www.prada-shoes.us.org/, http://www.raybans-sunglasses.co/, http://www.guci-heaven.com/, http://www.raybanoutlet.ca/, http://azcardinals.nfl-jerseys.org/, http://www.outlet-vansshoes.com/, http://www.nikeshoesoutlet.co.nl/, http://www.kate-spade-outlet.us.com/, http://www.raybansbocco.it/, http://rockets.nbajerseysvip.com/, http://www.babylisspros.com/, http://www.vansshoes-sale.com/, http://www.eccoshoesoutlet.com/, http://www.ralphslauren-polo.com.co/, http://www.adidas-shoes.co.nl/, http://www.coachoutletonlinemall.com/, http://www.scarpehogan-shoes.it/, http://www.rl-ralphlauren-polos.co.uk/, http://www.uggs-boots.com.de/, http://saints.nfl-jerseys.org/, http://www.versaceoutlet.com.co/, http://www.nikeairmax-australia.com/, http://www.burberbags.com/, http://www.bottegaoutlet.com/, http://www.jewelrys-swarovskis.com/, http://www.lonchamp.us.com/, http://www.moncler-jackets.com.co/, http://www.oakleysoutlet.com.co/, http://www.cheap-watches.com.co/, http://chargers.nfl-jerseys.org/, http://www.burberoutlet.com/, http://www.monterbeats-bydre.com/, http://www.airmax2015.net/, http://www.uggsboots.com.de/, http://bears.nfl-jerseys.org/, http://www.nike-airhuarache.co.nl/, http://www.soccers-shoes.us.com/, http://www.nbajerseysvip.com/, http://www.nike-airforce.com.de/, http://www.mcm-handbags.com.co/, http://www.thomas-sabo.us.com/, http://www.the-north-face.com.co/, http://www.oakleys-sunglassinc.com/, http://www.ralphlaurens.com.de/, http://www.belstaffjacketsoutlet.co.uk/, http://www.danskos-shoes.com/, http://www.coach-factoryoutlet.net.co/, http://www.giuseppes-zanottishoes.com/, http://www.coachoutlet-online.com.co/, http://www.giuseppezanotti.com.co/, http://www.vibram--fivefingers.com/, http://www.nikeairmax.com.de/, http://cavaliers.nbajerseysvip.com/, http://www.under-armour.us.com/, http://www.michaelkors.so/, http://www.linksoflondonvip.com/, http://www.jordan-retros.com/, http://www.cheap-softballbats.com/, http://www.nikeshoes-canada.ca/, http://www.newbalanceschuhe.com.de/, http://www.sac-hermes.fr/, http://trailblazers.nbajerseysvip.com/, http://www.co-aol.com/, http://buccaneers.nfl-jerseys.org/, http://www.coachoutletonline.vip/, http://www.mk-com.com/, http://www.michaelkorsoutlet.online/, http://www.nikeroshe-run.com.es/, http://www.timberland-shoesoutlet.com/, http://www.jeans-truereligion.com/, http://hornets.nbajerseysvip.com/, http://www.burbsoutlet.co.uk/, http://www.ralphlaurens-outlet.net/, http://www.nike-shoes.org.es/, http://www.replica-bagsoutlet.com/, http://www.philipppleinblog.com/, http://www.frameoutletonline.com/, http://www.gbyguessoutlet.com/, http://broncos.nfl-jerseys.org/, http://www.burberryoutletvip.com/, http://celtics.nbajerseysvip.com/, http://www.burberrybagsvip.co.uk/, http://www.nikefrees-shoes.co.uk/, http://www.oakleys-outlets.net/, http://www.nfl-jerseys.org/, http://www.poloralphlaurens.com.de/, http://www.mkbagsoutletvip.com/, http://www.nikerosherun.com.de/, http://www.jimmychoos-shoes.com/, http://www.marcjacobs-outlet.com/, http://www.thomas-sabos.com.de/, http://www.christian-louboutin.jp.net/, http://www.chrome-heartsoutlet.com.co/, http://www.converse-shoes-outlet.com/, http://www.oakleyssunglassesvip.com/, http://www.polo-ralphlaurens.com.co/, http://www.thenorthfacejackets.in.net/, http://www.cheapmontblanc-outlet.com/, http://www.outlet-pradas.com/, http://www.cheapnhljerseys.us.com/, http://www.nike-shoes.com.se/, http://49ers.nfl-jerseys.org/, http://www.polos-outletsstore.com/, http://www.tommy-hilfigers.de/, http://www.mcmbackpacks-outlet.com/, http://lakers.nbajerseysvip.com/, http://timberwolves.nbajerseysvip.com/, http://www.outlet-pumashoes.com/, http://packers.nfl-jerseys.org/, http://www.levis-jeansoutlet.com/, http://www.uggsboots-canada.ca/, http://www.coachoutlet-coachoutletonline.com/, http://www.ralphlaurens-polos.co.uk/, http://www.ferragamos.us.com/, http://www.zccoachoutlet.com/, http://www.burberry-outlets.ca/, http://www.lacosteoutlet.com.co/, http://www.pradas.com.de/, http://www.pandorajewellery.com.es/, http://www.nikeairmax-shoes.fr/, http://www.uhren-stores.de/, http://www.christian-louboutins.us.com/, http://www.nikerosherun.com.co/, http://www.fredperrypolos.co.uk/, http://www.michaelkorsviponline.com/, http://www.nikeair-max.com.es/, http://www.adidas-shoes.es/, http://www.true-religions.com/, http://www.rbglassesonline.com/, http://www.adidas-shoesoutlet.com/, http://www.burberrys-outletonline.in.net/, http://www.adidas-shoes.ca/, http://www.ok-em.com/, http://www.salvatoreferragamo.us.com/, http://www.okoutletvip.com/, http://www.coachfactory.cc/, http://www.thenorthface-jackets.com/, http://www.monclers-outlet.us.com/, http://www.nikefreerun-inc.co.uk/, http://www.beatsbydrephone.com/, http://www.oakleys.com.de/, http://www.retrojordan-shoes.com/, http://www.adidasschuhe-online.com.de/, http://www.raybans-outlet.cc/, http://rams.nfl-jerseys.org/, http://www.ralphlauren.mex.com/, http://76ers.nbajerseysvip.com/, http://www.the-northfacejackets.net.co/, http://www.nikeairmax-isc.co.uk/, http://www.marc-jacobs.com.co/, http://redskins.nfl-jerseys.org/, http://www.oakleys-sbocco.it/, http://www.hugoboss.net.co/, http://michaelkors.euro-us.net/, http://www.mizuno-running.net/, http://nuggets.nbajerseysvip.com/, http://www.airmax.com.se/, http://www.cc-beanies.us.com/, http://www.uggs-boots.com/, http://www.nikeair-max.ca/, http://www.pandora-jewellery.com.es/, http://www.outletbags.com.co/, http://www.ferragamo-inc.co.uk/, http://www.jordan.com.de/, http://www.skechers-canada.ca/, http://www.givenchy.com.co/, http://www.adidassuper-star.com.de/, http://lions.nfl-jerseys.org/, http://www.new-balanceshoes.com/, http://www.tommyhilfigers.com.de/, http://warriors.nbajerseysvip.com/, http://www.crystalsswarovskis.com/, http://www.oksframevip.com/, http://www.michael-korsbags.com.co/, http://www.nike-store.com.de/, http://colts.nfl-jerseys.org/, http://www.coachoutletonline-usa.com/, http://pistons.nbajerseysvip.com/, http://mavericks.nbajerseysvip.com/, http://www.asicsshoes-outlet.com/, http://www.jack-wolfskinsoutlet.com/, http://www.nike-airmax.com.de/, http://www.prada-outlet.net.co/, http://steelers.nfl-jerseys.org/, http://www.nikefree5.com.co/, http://www.vans-shoesoutlet.co.uk/, http://wizards.nbajerseysvip.com/, http://www.parajumpersjacketsoutlet.com/, http://www.true-religionsoutlet.com/, http://jaguars.nfl-jerseys.org/, http://www.michaels-korsoutlet.top/, http://www.hogans.com.de/, http://www.oakley-outlet.fr/, http://www.headset.us.com/, http://www.fendi-outlet.us.com/, http://www.ferragamo.net.co/, http://www.michael-kors-bags.com/, http://www.supra-footwears.com/, http://grizzlies.nbajerseysvip.com/, http://www.nba-jerseys.com.co/, http://www.outlet-tommyhilfigers.com/, http://www.michaelkors-bags.net.co/, http://www.mbt-shoesoutlet.com/, http://www.puma-shoes.com.de/, http://www.bcbg-canada.ca/, http://www.coachblackfriday.com/, http://www.vansschuhe.com.de/, http://www.ralphslaurensoutlet.co.uk/, http://www.rayban-wear.co.uk/, http://www.ray-bans.net.co/, http://www.raybans-outletonline.com/, http://coach.euro-us.net/, http://www.airmax-90.com/, http://www.kate-spades.net/, http://www.ralphlaurens.com.co/, http://www.nikeshoes.fr/, http://www.the-north-face.net.co/, http://www.raybans-cher.fr/, http://www.nhljerseys.com.co/, http://www.coachoutlet.fr/, http://www.designer-bags.us.com/, http://www.truereligions.net/, http://www.long-champ-outlet.com/, http://www.tommyshilfigers.com.co/, http://www.timberland-boots.fr/, http://www.converses.us.com/, http://www.cheaprayban-outlet.com.co/, http://www.uggs-australia.com/, http://www.converse-shoes.net/, http://www.toryburch-outlet.com.co/, http://www.bottega-venetasoutlet.com/, http://www.dsquared2-outlet.com/, http://pacers.nbajerseysvip.com/, http://www.ralph-laurens-polos.com/, http://www.jimmychoo-shoes.com/, http://www.mlbjerseys.com.co/, http://www.outlet-michaelskors.com/, http://seahawks.nfl-jerseys.org/, http://www.nikeshoes.com.de/, http://www.ralphlauren-canada.ca/, http://giants.nfl-jerseys.org/, http://www.mcmshandbags.com.co/, http://www.jackwolfskinoutlet.ca/, http://www.rayban-outlet.co.nl/, http://www.rosherun-shoes.us/, http://www.nikeshoes.mex.com/, http://www.belstaff-outlet.com/, http://www.michaelkors-bags.co.uk/, http://www.nfl-jerseys.com.co/, http://www.christianlouboutinoutlet.net.co/, http://www.pandora-jewelry.com.de/, http://www.airhuarache-inc.co.uk/, http://www.outlet-pradabags.com/, http://www.lacoste-polos.us.com/, http://www.burbags-outlet.com/, http://www.cheap-juicycouture.com/, http://www.newiphone-cases.com/, http://vikings.nfl-jerseys.org/, http://www.new-balanceoutlet.org/, http://www.australia-michaelkors.com/, http://www.tommy-hilfigeroutlet.net/, http://clippers.nbajerseysvip.com/, http://www.ralph-laurenoutlets.com/, http://www.nike-freerun.co.nl/, http://www.fidgetspinner.com.co/, http://raptors.nbajerseysvip.com/, http://www.barbours-factory.com/, http://www.michaelkorspurses.co.uk/, http://www.airjordanshoes.com.co/, http://www.barbours.us.com/, http://www.christian-louboutins.com/, http://www.canada-michaelkors.ca/, http://www.tods-shoesoutlet.com/, http://www.salvatore-ferragamos.com/, http://www.skecher-outlet.net.co/, http://heat.nbajerseysvip.com/, http://www.cheap-jordans.com.co/, http://www.michaelkorsoutlet.se/, http://www.pandora-jewelrys.com/, http://www.michaelkorsbags-outlet.com/, http://hawks.nbajerseysvip.com/, http://www.newbalance-canada.ca/, http://www.rbsunglassesoutlet.co.uk/, http://ravens.nfl-jerseys.org/, http://www.under-armouroutlet.com/, http://www.hogan-shoes.org.uk/, http://patriots.nfl-jerseys.org/, http://titans.nfl-jerseys.org/, http://www.the-northface.ca/, http://www.montblancs.com.co/, http://www.northfacejackets.fr/l