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작성자 정** (222.♡.196.107) 작성일 10-03-06 01:31    조회 3,245회

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안녕하세요!

오늘 동내에 있는 정형외과를 방문했더니
의사선생님 曰 루게릭 병을 아냐고 물으시면서
심하게는 루게릭일수 있다고 말씀하시면서
진단서를 써 줄 테니 대학병원을 가 보라고 하십니다.
얼마나 놀라고 겁먹었는지 집에와서 잠도 못자고 지금까지 루게릭만 검색하고 있습니다.


저는 38세 남자로 증상은 이렇습니다.

지난 2/13일 설을 쇠러 시골갔다가
가족들과 마당에 둘러 않아 고기를 구우며 막걸리를 몇 병을 쪼그려 앉아 마셨습니다(2시간 정도)
그러구 일어나 꽤 높은 계다을 오르는데 다리에 힘이 약해지면서 여간 힘든게
아니었습니다. 하마터면 풀썩 주저 않을 뻔 했습니다.
속으로 오랜만에 눈을 치우고(제법 많은 양의 눈을 치웠음) 한참 쪼르려 앉아서
근육통이려니하고 잠을 잤습니다.
다음날 저녁 무렵 친구네 세배를 가서 1시간 가량 앉았다 일어서는데
다리에 힘이 없어서 친구의 부축으로 겨우 일어났습니다.
그런데 그 집 문 앞을 나오다 다리에 힘이 풀리며 나도 모르게 순간 턱썩 주저 앉고 말았습니다.
너무 당황했습니다.  아무리 근육통이 있어도 이런 적은 없었는데...
차를 끌고 집으로 돌아와 마당을 걸어 가는데 내 의지와는 상관없이
또 같은 증상이 일어 났습니다
한 번씩 주저 앉을때 마다 혼자서는 도저히 일어 설 수 없었습니다.
허벅지에 힘이 들어가질 않았습니다.
혼자 일어서려고 무진 노력햇지만 실패하고 다리에 근육통만 생김.
다음날은 다리에 통증이 있긴 했지만 조심해 걸었습니다.
이 때 부터 의식을 해선지 다리에 쉽게 근육통(알이 베다)이 생깁니다.
가령 전철을 갈아 타는 계단을 다닐때, 사무실 의자에 하루 종일 앉아
일하다 퇴근무렵 일어설때...

그러곤 괜찬았는데
3/3일날 소주랑 맥주 한잔하고 집에 오는 길에 그만 길 바닥에 또 털썩 주저앉는
사태가 발생했습니다.  혼자서 못 일어났지요.
넘어지면서 왼쪽 손가락 골절.
그러구 3/4일날 상가집 가서 2시간 가량 책상다리로 앉았다가 일어서 나오는데
계단을 혼자 못 내려왔습니다.다리가 저절로 구부러져 주저 않을 것만 갔았습니다(술 안마심)
그러구 주차장으로 가는 도중에 또 풀썩 주저 않았습니다.
역시 혼자 못 일어나 주위의 도움을 받았습니다.
글을 쓰는 지금 3/6일 새벽인데도 다리가 후들 거립니다.

이 외에 다른 증상은 없습니다.

참고) 작년(2009년) 11월경 자고 일어났는데 목근육이 너무 아파 고개를 움직일수 없어서
x-ray 찍었는데 큰 이상은 없고 다만 거북목(c자 형태이어야 하나 일자 형태 목)
이라고 하시더군요.  그러고 한 2주정도 지나니 괜찮았습니다.(약 먹음) 

의사선생님의 루게릭이란 말씀이 머리에서 떠 나질 않고
저를 공포 스럽게 합니다.


루게릭을 의심해야 하나요?

아니고 다른 병이라면 쉽게 치료 가능한지?

교수님의 조언을 듣고 싶습니다.

감사합니다.

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세상끝에서님의 댓글

세상끝에서 아이피 (203.♡.186.208) 작성일

보통 그런 증상이 오면 정형외과를 먼저 찾는 경우가 대부분이죠. 물론 정형외과에서는 별 다른 증상을 발견 못하는 경우도 있습니다. 결국 증상은 나타나는데 원인을 못 잡게 되면 지금 말씀 주신 의사분처럼 정형외과가 아닌 신경외과쪽으로 다시 가 보라고 말을 합니다.근전도 검사를 받아보는게 제일 정확할거 같습니다. 물론 다른 병명에 의해서도 근전도검사에서 반응이 나타날수 있지만 본인의 증상과 근전도 검사에서까지 결과가 일정이상이 나온다면
거의 틀림이 없다고 봐도 무방합니다.
참고로 전 루게릭을 가장 가까이에서 전 과정을 지켜보았고 결국 하늘나라로 떠나 보낸 기억이 있어서 다시 그 기억을 떠올리기는 싫지만 오랜만에 생각이 나서 홈페이지에 들렀다가 몇자 적고 갑니다. 너무 두려워 하지 말고,아니면 다행이지만 설령 결과가 원치 않는 방향으로 나오더라도 담담하게 받아 들이고 생활하시길 바랍니다. 본인의 마음가짐이 정말 중요합니다.
전 의사는 아니지만 몇자 적고 가네요 그럼....

-p..s- 참고로 우리나라에서는 루게릭쪽에 많은 연구를 하고 있는 병원이
아주대병원과 서울대 병원이 대표적이라고 할수 있겠네요. 교수님과 일정 잡고 자세한 증상
말씀 하시고 검사 받아 보시기 바랍니다. 좋은 결과가 나오기만을 바랍니다.....

루게릭으로 판명이 나고 의학적인 전문지식을 요하는게 아닌 조언을 구하고자 한다면 그때
다시 제게 문의 주시면 제가 드릴수 있는 조언을 드리도록 하겠습니다.
http://blog.naver.com/murmur76    네이버 murmur76 쪽지 주셔도 됩니다. 힘내세요~

wqwq님의 댓글

wqwq 아이피 (172.♡.210.145) 작성일

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